sorry to take over your post lilyyyy!
Alison, here is a picture of my little guy's leg. the PWS goes from his hip down to his toes. he is 15 months now and i really haven't noticed much of a change in it's appearance since he was born. since it's coming on a year since we've had the diagnosis, we'll be going back soon to have it looked at again, but it's nice to have another opinion (from an expert CMTC mom
Thanks for your time!