sorry to take over your post lilyyyy!
Alison, here is a picture of my little guy's leg. the PWS goes from his hip down to his toes. he is 15 months now and i really haven't noticed much of a change in it's appearance since he was born. since it's coming on a year since we've had the diagnosis, we'll be going back soon to have it looked at again, but it's nice to have another opinion (from an expert CMTC mom
)
Thanks for your time!
Sarah
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