to anyone out there
Was born with a strawberry on forehead in 1974. They burnt it off with dry ice. I had trouble mentally my whole life and never knew why. Found out at 27 that i had dandy walker varient. Just read on internet today i probably have phace syndrome also. I live in rural ky. I have been on tons of meds. I have almost died 2 times once from meds once from hydrophalus. I completely understand anyone who is having trouble finding answers. There is a professor in seattle washington who studies dandy walker. Go to the website called dandy walker alliance they have the info. Goodluck and may god bless.