Thanks Katie and Sarah for sharing,
Interesting that both of you decided to wait. That's the flip side of it, we hope everything's okay and it's 'only' a PWS. But what to do with the PWS?
Anesthetic and painful laser treatment doesn't sound like a fun thing to put an infant through either. I'll be honest, when I first saw the PWS I completely dismissed it. Must be that parents unconditional love thing. But the reactions of others on her behalf (she's a girl, it'll be tough, self-image, etc) really made me think more about it. I guess I'll just have to ask the right questions of the dermatologist. How less effective is treatment the longer we wait? I've heard some pretty horrible general anesthetic stories...
Anyways, thanks again for your thoughts.