Vascular Birthmarks Foundation Forum - View Single Post - PWS on Leg - Concerned parent - what to look for
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Old 08-09-2012, 03:49 AM
nataliegrace nataliegrace is offline
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Join Date: Aug 2012
Posts: 2
Default Mine too...

My daughter is 12 months old, and she too has a port wine stain from buttocks to toes on the outer part of left leg. It is very light when sleeping, but since she is learning to walk it is only getting darker. I took her to Mayo Clinic and it was confirmed that she has KT syndrome. It is a little bigger, but you can't tell unless you know what you are looking for. She is now wearing a fitted compression stocking as much as possible. I am worried for the future, but I am being hopeful. Scary stuff! I hope this helps. I am open to talk about anything if you have any questions...
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