Hi, my 12 month daughter has a port wine stain from her buttocks all the way down to her toes on the outer part of left leg. I noticed that that leg looked a little chubbier, so I had her checked out and sure enough she has KT syndrome. She has been wearing a compression stocking and that seems to be helping a lot. At Mayo clinic there is a Doctor Driscoll that is amazing. Highly recommend him and his staff. Hugs to you and Good Luck
