Hi nataliegrace,
I wrote about my daughter she has PWS on the right leg, buttocks, tongue, lower lip and forehead, also the right leg is thinner and shorter, about 1.5 cm.
Exploring all the vascular malformations seems to me that this might be a KT. Soon we go to a second opinion.
Can you send me your email and I would like to send you some pictures of my child?
My email is
jasenka.haluzan@gmail.com