My eldest son is now 6 years old and was born with what my current doctor called Lymphangio-venous Malformation. He undergone surgery to move some of the bulging and painful part on his hand from his knuckles to the arm area 6 months ago. Next month we have schedule for removing some of the LM around his small finger and palm. Here in Malaysia, we have no option for sclerotherapy but currently I'm quite satisfy with what we have. The first surgery was a new option when my son started having pain around his wrist from 2 years ago, eventhough not consistently.
I still believe the decision I made 6 months ago was the best I've ever made for him because now I can see he sleep better and was not disturb like before.