Vascular Birthmarks Foundation Forum - View Single Post - PWS on leg and leg length discrepancy
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Old 08-20-2012, 01:05 PM
florina florina is offline
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Join Date: Aug 2012
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hello,my doughter have a PWS oh her arm,part of backpack, part of chest and hand,im so woried if she haves KT syndorme,from all the cases i read here i noticed almost everyone who gots PWS also have KT syndrome,im desperated,in my country theres no specialist in this cases and i dont know wat to dy,my doughter is one week old now,the hand het is afected by PWS is little inflated than other one,but orthopedic says that that is from enlarged capilars caused by PWS,IM SO UNHOPLES,I DONT NOW WHAT TO DO,doctors says m to wait until she grows one year old,how can i wait in anxiety one year...
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