I found a thread on the board that email address from certain providers may not go through. I am so grateful that Corinne forwarded my email and I just got response from Dr. Levitin.
He recommeded an MRI with contrast before any treatment and seeing a occluplastic surgeon for biopsy or confirming the diagnosis.
Thank you all so much. This is so much quicker than response from my local ophthalmic plastic surgeon that my ophthalmologist referred us to. I don't even get an appointment yet because he is out of town for this week and his schedule is full for the coming two months.
I am going to make a donation and hope more people can be helped like us.