Vascular Birthmarks Foundation Forum - View Single Post - Please help me
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Old 09-10-2012, 07:44 PM
blondie02_84 blondie02_84 is offline
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Join Date: Sep 2012
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Default Please help me

Hello everyone. My baby girl, Chloe, was born on June 18, 2012. As soon as she was born we noticed her right arm was very dark purple. The nurses and doctors at the hospital said it was as a result of birth trauma. When we took her home, it never went away. It would get worse when she was cold or crying. What was worse was when I noticed her hand on the affected arm looked bigger than the other hand. We took her to her pediatrician who immediately made an appointment for her with a pediatric surgeon at the OU Children's Hospital. The surgeon didn't know what it was so he sent us to a pediatric orthopedic doctor. He also didn't know what it was so he sent her to get an ultrasound and speak with vascular specialists. There, 3 doctors saw her and told us she had Cutis Marmorata. They said it was rare and had never seen it in the hospital before, so they took pictures to show their residents. They said that it will go away as she gets older and didn't offer any sort of information or help to us. I've been doing research and I can't figure out the difference between Cutis Marmorata and CMTC. From what I can tell, CMTC can come with other health problems. Now I'm freaking out and upset and don't know what to expect for my daughter's future. Can someone out there please help me?

*I can post pictures if I need to*

Thank you all so much!
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