Vascular Birthmarks Foundation Forum - View Single Post - Port wine stain and hypertrophy
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Old 04-05-2004, 01:28 AM
sanja
 
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Default Re:Port wine stain and hypertrophy

Hi Lee! My name is Sanja. I am female, 36-year-old. I have PWS on my right leg too. I used to go to the beach when I was a kid but I had to cover my right leg because of the sun. The doctor said it mustn't be exposed to the sun rays. I miss so much going to the beach and having a sunbath. I never learn to swim because of PWS. It must not be hurt cause it might begin bleeding. I cannot walk or stand too long. As I live in Bosnia and Herzegovina I dont go to the doctor anymore. We miss a lot of specialists here. But I plan to move to the States and hope to get some medical advice there. Feel free to email me any time.
Sanja
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