Vascular Birthmarks Foundation Forum - View Single Post - 7 week old with extensive haemangiomas on head
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Old 10-02-2013, 07:19 AM
blackrose blackrose is offline
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She will need MRI and ECG scans to ascertain whether she has any H internally. Consultant not overly concerned about liver/intestines but will order ultrasound too. The consultant thinks that Chloe has a heart murmur, and surprised it wasn't picked up at birth (same hospital). We have been referred to a cardiologist ASAP. I imagine all appointments will be turned around quickly as the NHS kicks into gear very quickly for this kind of thing. The consultant was concerned about the haemangiomas in Chloe's mouth/palate and asked me to keep a close eye. Usually they would be treated with propanolol but since Chloe nurses and breaths fine we will monitor for now. I am also seeing a leading professor in the field next week in parallel as I have private health insurance. I don't expect the diagnosis or treatment to be different but since I have it, I will use it.
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