Vascular Birthmarks Foundation Forum - View Single Post - Regrowth After Stopping Propranolol
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Old 04-14-2014, 02:29 AM
Kfonte Kfonte is offline
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Join Date: Apr 2014
Posts: 4
Default Regrowth After Stopping Propranolol

I'm new here so I apologize if this has been discussed several times before. My daughter was diagnosed at 2 weeks with a lower lip hemangioma, we went to a specialist and she was on Propranolol by the time she was 6 weeks old - 3 times a day for the past year. She turned a year on March 2 and you couldn't even see the hemangioma on her lip. It was amazing. March 4 marked her last day on Propranolol and our doctor explained the potential for regrowth but we all thought it was unlikely since we such positive results. Unfortunately, after only a month we can see a change in color and it is once again bubbling up. Instead of putting my daughter back on propranolol, she was prescribed Timolol twice a day for the next 11 weeks.

I hate to sound like a glass half empty person but with it being just a liquid that we put on her lip, it doesn't seem like it would be that effective. My daughter literally licks her lips the minute we rub it on.

Has anyone had success with Timolol after stopping Propranolol? Thank you for any advice - I appreciate it!
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