It's nice to hear from you again. I understand what you are saying. But, have you ever seen pictures of PWS that have deteriorated -- pictures at, let's say, 50 years old, of PWS having begun deteriorating at your age?
Do you know www.birthmarks.com?
It is a very well-informed and supportive group of PWSers. I would be curious to check their reactions to your position: it is a very interesting discussion. Thanks for sharing. I appreciate your plain honesty.