Re:PWS and Periodontal work
My 7yo son (who is also named Jon) has the same problem. His PWS extends into his gums and soft pallate. He will probably need some fairly extensive work done when he is a little older. He has seen a neuroradiologist and had an MRA which did not show any main "feeder vessels" - they are too small to see. We are planning to see Dr Waner this summer. You might want to see if there is an oralmaxillofacial surgeon in your area who has experience with this, before someone cuts into your gum area.