Re:Herabl Treatments for PWS instead of laser
My daughter was born in oct 2003 and also has a pws on her right arm, her shoulder and chest and fingers. we have been to a hemangioma specialist and she didn't say that there would be any problem with the arm, she informed us that it may be a slightly different shape than the other arm due to the fact that the skin may thicken but it will be barely noticeable. My daughters pws is effecting the skin only. It may be different if it is effecting the underlying tissue. I am in the same vote as you she seems to be moving her arm alright but most Doctors don't really know much about the condition.
I hope that this has been of some help.