Re:hemangiomas & Phaces syndrome
See I really don't know much about PHACES syndrome, at this point they are still doing testing to find out what is going on with my son. About two weeks ago, my sons dermatologist attended a conference and my son's case was presented nationally, because of the oddities involved. So now they are doing enzyme testing, and we will finally have the results tommorrow! His hemangioma is still very little, only about the size of the hole in a CD. But he does have a malformation of his internal carotid artery, and one webbed toe, which they are saying are all signs of PHACES Syndrome. How did you find out that your son had PHACES syndrome? They are saying my son's case is very unusually presented because his hemangioma is so small!