Re:AVM in hand and arm
You did not mention where in TN you are....so not sure if this might be helpful to you. I live in Cincinnati, OH...our 16 month old daughter has a vascular malformation of her right leg....we don't have a definite dx yet....she has an app't later in Aug. to have her evaluated at Cincinnati Children's Hospital's Hemngioma and Vascular Malformation Clinic. I have corresponded with another mom of a 16 month old with Klippel-Trenaunay syndrome whose daughter is seen by the physicians at this clinic and she reported that she was very pleased with the care. I'll let you know how things go when Mimi is seen.
Christine (mom to Mimi, 16 mos, with vascular malformation R leg)