I have heard so many good things about Boston Children's... but keep in mind that there are other physicians out there.
The shame of it all is the 18 year mis-diagnosis. That is why the VBF's mission statement includes educating the medical community.
I wonder if you'd consider participating in our next Day of Awareness... being a nursing student, it would be a great idea to give out some literature at school (nothing like being educated at school, is there
). Plus, with your history, it would really carry more weight. Would you consider that? You don't have to donate money (although we like money), but helping raise awareness helps everyone.
Take good care and thanks for re-introducing yourself!