venous/lymphatic malformation of mouth
my daughter is 20 months old and we are now facing the possability of surgery on her lip. she has what apprears to be a combination of venous & lymphatic malformation affecting her cheek, bottom lip, & tongue. over the past several months her bottom lip has enlarged and the side of her tongue is slowly enlarging. this area is purple in color. she has been seen in the chicago area by a group of doctors who suggested surgery on her lip, but i am seeking any others out there w/ similar malformations for any info on treatments & outcomes. i am willing to travel afar to get her good treatment by a doctor very familiar w/ this.