Hi Amy Ann,
I am glad you are here, there has been allot of people that come to this site once or twice, and then do not check there posts for replies. I try to be as active as I can on foundations to help others thru what I have already gone thru.
So do you have a Port Wine Stain, hemangioma, etc?
I am 22 and have PWS.
I am sure you have plenty of advice that you could share.
If might be an opinion, but you have lived with your condition, and have been thru good and bad times in your life. Everybody has room in there life to learn. My 96 year old Great Grandmother as made it her goal to atleast learn one new thing a day. She can tell you some stories to, let me tell you.
Anyways, we would love to here more about you and what you have to offer to others in this website.
I hope to talk to you soon.