HI all I am new here, just dx with an AV malformation/AV Fistula in my left elbow/forearm. Was told I was born with it and it has gotten worse I am 26 years old and live in a small town in southeast GA, I moved down here a year and a half ago from Long Island NY.
There are no signs of it visible on the skin, except for a large "mass" on the elbow and bruising off and on for the last 5 years or so, I no have swelling from the elbow to the fingers, for the last month or so i have not been able to use my left arm/hand due to swelling and pain. Over the years I have been to many DR's throughout the NY tri-state area, and being told it was fine just a bruise and it would go away ???
I have been out of work for over a month now, have lost my insurance, cannot get the radiologist to call back..I am so frustrated now, I am glad I found this site...
Is this that rare?? Because this DR I am waiting on is the only one in the area, other than my vascualr surgeon recommending someone in colorado ???
For those who have rec'd treatment, has it worked?
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