Hi--my name is Debbie and I have an AVM rt thigh that is very extensive as well.* I have been told that my heart is being overworked because the tumor is so big. I too was told to have my leg amputed and seen many doctors.* No doctor would touch it through surgery due to the fact that I too would bleed out.* *I am having my first embolization on Friday, Mar 3.* I am scared to death.* I am in soo much pain and going through the pain management clinic.* It was really good to read your article and get some comfort that there is someone out there that understands what I am going through.*