Vascular Birthmarks Foundation Forum - View Single Post - Lymphangioma
Thread: Lymphangioma
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  #11  
Old 06-27-2005, 09:29 PM
Bearsmom
 
Posts: n/a
Default Re: Lymphangioma

Hello again,
Just want to add that I do not beleive Ok-432 (Picibanil) injection is for everyone, or that everyone should try it, It is a decision that should be made by everyone involved. With a dr you trust. For our family it was the right time to try it. Iowa study does exclude many, but help a lot. More research is needed in this county, OK-432 was start in Japan. A very smart man, who I am very sad to say died in 2003 at the age of 55. My child is very lucky her cyst is minor compare to many. But hope is on it's way. Iowa research was just started in 2000. It may not be a cure but at least there is hope out there. When we were first told that Tessa had LM we could not find support groups or research papers with much info. Today there is at least two group for just LM (cystic hygroma), not to forget about this one. Thank you so much for listening LOra
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