Hello,
I have to say as though I am not familar with the resection with Dr. Waner, but I did want to comment.

My daughter was born with a hemangioma and is dx with PHACE syndrome so I have been through some of what you have been through. But....just recently I had decided to go back to work as a nurse. I read an ad for a home health care nurse and knew that I had to apply.

I trained today on the case at University of Iowa, come to find out.....the baby was also born with a cystic hygroma. Small world with it being in my world and to read your posting today. You can be sure that I am going to tell mom on Wed. to check this board and to also contact Dr. Waner for tx and help.

I would greatly appreciate any and all information that you would be willing to share with me as I am now getting ready as a nurse (I read your story too) to take on this case.

Thanks a lot
Nikki