New research study

[missy]

Linda Rozell-Shannon is doing a research study for her PhD and needs to know if there are any moms of babies with hemangiomas who had a placenta problem and also had pathology done on their placenta so that the pathology may be available for our medical research team to review. If anyone meets this criteria: 1) had a baby with a hemangioma; and 2) had a placenta issue; and 3) has the pathology still available on their placenta (probably at the hospital where the baby was born), please contact Linda at hvbf@aol.com


PS: If you were told you had a placenta problem your placenta was likely "examined" and that would mean it may still be available in a block of frozen tissue for further study. You may have to call your ob/gyn office to verify.

hi , i had bleeding and was given duphaston( a synthetic hormone similar to the naturally occurring sex hormone, progesterone)during my pregnancy. 2 of my freinds also took duphaston and their kids have hemangiomas also

Hi

My little boy was born 6 weeks premature in June 2004 weighing 3lbs. After having a scan it was found that there was very little flow from the placenta through the cord and he was delivered by emergency c-section. He then developed an hemangioma on the left eyebrow.

[brighatea]

just to chime in here - i was dx'ed w/complete placenta previa, which ultimately became marginal. docs insisted i have a section and my son was delivered two weeks before his due date. he has an h just below his left eye which we're watching (he's 5 1/2 months old). i don't believe any examination of the placenta was done, though the nurse asked if i wanted it (LOL). i guess she thought i might like to bury it beneath a tree or make it into capsules or some such. finally got the ped to refer us to the vascular anomalies clinic at the local children's hospital so i should have some indication of our treatment options soon.

[heatherapril]

i know how u feel i too had placenta previa and my child was born 3 weeks premature also with a hemangioma of the face good luck with ur boy

[L2Boston]

I had placental abruption and my daughter was born 2.5 weeks early. She is 5 weeks old has 3 hemangiomas - one on the cheek under her eye about the size of a quarter, one on her upper right chest, and a tiny one on the back of her right thigh. I did not have pathology done on my placenta that I know of.

[sarahboh]

What a great site, just got on and found this, quite amazing that the two can be related. My son Ethan was born July 1, 2007 thus he is now 11 weeks old. He has a hemangioma on his left shoulder/back area which has now ulcerated. At birth my placenta would not come out even with traction/oxytocin thus we needed an ob-gyn to come and physically remove it with her hands (we had a midwife delivery at the hospital). Once removed all attending examined it and said they couldn't believe how mangled it was, came out in chunks, the attachment where the umbilical cord was itself was completely off center, it just didn't look like a healthy, "normal" placenta and chocked it up as that and they discarded it. They never sent it for pathology or anything. I am wondering if possibly this had something to do with his hemangioma now? What do you think?Sarah

[heatherapril]

hi everyone im new here. but like all the rest of u i have a child that was born with a hemangioma hers is along her upper lp and through her nose. my daughter is now 3yrs old she has under went 8 laser surgerys and injectable steroids.theres been alot of improvement to her facial area but not enough to where kids arent afriad to play with her. next month she will under go co2 laser treatment and injectable steroids if the doctor doesnt see an improvement like she wants we will discuss more invasive surgery wish her luck bye for now.

[hammer]

not sure how to use this as i'm new to this site,, please dont think me alarming but if you can, go for the more drastice approach. i'm a 37 year old male with the worst hemanjima i've ever seen covering my body and it DID cover my face to the extent that it disfigard my nose, eye, jaw, and lips with the heavy weight over the years. I had surgery from the age of around six months at Gt Ormond St hospital in London were they injected me with salin salt, tried scrapping parts out, end with taking a muscle from my leg and putting it in my face just to see if they could get me to smile!! i went through years of this (16) to end up looking only slightly better but with bad memories. then I canme across a Mr Poole in Oxford, he believed the only way was to cut this out totally. he placed two bags under my skin, streched the skin and peform three skin graphs. I just wish they new about that in the seventys! which ever option you take your child will be fine with it,, birthmarks are not like going blind in teenage years,, its a part of you like have big ears or a big nose!! and believe me they will have freinds, i have a wife and two very healthy boys now,, just try not to treat him/her differnt, dont make allowences for them, and if someone stares there only staring because they may not no what is wrong. good luke your be cool. (sorry for the spelling)!!

[mensell09]

Hi, I have a 12 week old daughter and they are telling me it is a Hemangioma. Can you please let me know all the test you had to have done and what to do to fix it so I can do everything I can for my daughter.