I realize this is several months after you have both posted, but I thought I would chime in. I have been under the care of Dr. Yakes in Denver for the past two and a half years ... he is great at what he does and I highly recommend him for treatment! His staff is especially wonderful and he has a special unit and surgical area at Swedish Hospital.
I am 46 and always had what I thought were blood clots in my right arm. At least, that's the best that vascular specialists told me until I had a lump come up in my right forearm about three years ago. I had two surgeries in that area when I was very small (about 2 years old) to excise what they thought was a hematoma. Unfortunately, during both surgeries I nearly bled out on the table, so they warned my parents to never allow anyone to touch that arm for any reason!
Fast forward to just three years ago when the lump began to grow like crazy. Fortunately, an educated vascular surgeon sent me for an MRI and was familiar with AVMs. Although he couldn't treat them, he knew Dr. Yakes very well and referred me.
Since that time, the forearm AVM has been successfully eliminated after two alcohol embolizations. A full arm MRI revealed what Dr. Yakes calls a "monster" in the muscle and boney structure of my elbow. I have had four embolizations on that AVM, but it appears to be growing and I am scheduled for another embolization late next week.
At any rate, I understand the frustration that you both are experiencing and can assure you that Dr. Yakes is the real deal. Feel free to email me if you have any questions or just need a support sister