resources for Canadians - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 02-07-2010, 05:20 AM
mperron mperron is offline
Member
 
Join Date: Feb 2010
Posts: 65
Default resources for Canadians

My son has a small deep H that just developed and I am wondering what specialists are available in Canada and if the services are covered by our healthcare system.
Reply With Quote
  #2  
Old 02-07-2010, 07:15 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,729
Default

Others will have to come along and answer that. I just wanted to say hi and welcome!

Missy
Reply With Quote
  #3  
Old 02-09-2010, 10:40 PM
Pookey28 Pookey28 is offline
Junior Member
 
Join Date: Jan 2010
Posts: 8
Default

what part of Canada? I took our daughter to Children's Hospital here in BC...they have a dermatology dept. there and one of the dr.'s deals with H's....she is AMAZING!
Reply With Quote
  #4  
Old 02-10-2010, 02:34 AM
mperron mperron is offline
Member
 
Join Date: Feb 2010
Posts: 65
Default

I live in Mb. What's the name of the doctor? Is she anti-propronol? This seems to be the case with the doctors here
Reply With Quote
  #5  
Old 02-11-2010, 04:36 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default

I hate to say it, but getting treatment in Canada is difficult. As you know you have to be reffered by your primary...and then many report a long wait to get into the speicialist. THen the result is usually disappointment for the parents when they are told to not do anything. Not a proactive approach typically. Watching the h. is valid, treatment is not required in most cases...but you should at least be given options and information on benefits and risks and pros/cons of doing/not doing treatment now or later.

Propranonal is a pretty new approach to treating hemangiomas. It might be difficult to find someone that is willing to try this, even with all the promise it has shown so far. What type of h. and location?
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #6  
Old 02-13-2010, 06:46 AM
Pookey28 Pookey28 is offline
Junior Member
 
Join Date: Jan 2010
Posts: 8
Default

Her name is Dr. Julie Prendiville, and she SWEARS by Propranolol. She has quite a few patients on it and they are all success stories. We just started our daughter on it 2 days ago, and already I see a small difference.
I had the 1st doseage administered at the hospital...and each week they are raising it by 1/4 ml...each time we go back to our local Hospital.

I SWEAR this is hands down the sweetest most knowledgeable dr when it comes to H's. She came HIGHLY HIGHLY recommeded and now I know why!
Reply With Quote
  #7  
Old 02-13-2010, 06:48 AM
Pookey28 Pookey28 is offline
Junior Member
 
Join Date: Jan 2010
Posts: 8
Default

Forgot to mention that at first she wanted us to wait...and 2 months later he H was up at her eyelid. Due to the severity of where it was we had to take drastic action.
Reply With Quote
  #8  
Old 08-12-2011, 01:09 AM
xmz xmz is offline
Junior Member
 
Join Date: Jul 2011
Posts: 1
Default

Pookey28: I am so glad to see your post! I am also in BC Canada. My 11 weeks daughter has a hemangioma on her forehead and both our family dr and a pediatrician said we should wait and see. But daughter's H grows very fast so I had to do my own research. I knew propranolol was very effective but wasn't sure which doctors, if any, in BC Canada would use it. On this website I found the Dr. Prendiville was on the list, and so I asked my family doctor to refer my daughter to her. Now I feel much more hopeful knowing Dr. Prendiville is supportive on propranolol! Hope I get an appointment soon...

Quote:
Originally Posted by Pookey28 View Post
Her name is Dr. Julie Prendiville, and she SWEARS by Propranolol. She has quite a few patients on it and they are all success stories. We just started our daughter on it 2 days ago, and already I see a small difference.
I had the 1st doseage administered at the hospital...and each week they are raising it by 1/4 ml...each time we go back to our local Hospital.

I SWEAR this is hands down the sweetest most knowledgeable dr when it comes to H's. She came HIGHLY HIGHLY recommeded and now I know why!
Reply With Quote
  #9  
Old 02-18-2010, 01:14 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054
Default

Were is Dr. Prendiville located? We would like to have her listed on our resource list.
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #10  
Old 02-22-2010, 03:42 AM
mommabear mommabear is offline
Junior Member
 
Join Date: Jan 2009
Location: Canada
Posts: 9
Default

Hi there,
I am from MB. My daughter has a hemangioma on her forehead. I have seen a dermatologist and plastic surgeon in Wpg. I have also contacted the Peds Vascular Clinic in Childrens Hospital in Calgary. All have suggested the wait and see approach. We would look to surgery before she's school age. She is now 17 months old! I'm not sure what's covered through Great west life/blue cross etc....but if you dig anything up, please post.
Good luck to you! I can honestly say that I was paniked about the H for the first year of her life, now I've relaxed. It stopped growing at 9 months...starting to grey a little........I think..
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump