venolymphatic malformation of forearm , looking for anyone who has had embolization

[danielle6315]

Hi i have a 9 year old recently dx with venolymphatic malformation on her r forearm. Previously thought to be a deep hemangioma that was treated with laser. We have dr. Rosen as our doc and appears embolization will be route taken. Im looking for any experiences with embolization. Success? Pain scale? Complications?

[dancermom]

Hi, Danielle, there are a number of patients of Dr. Rosen's on avmsurvivors.org

If you join the Extremity AVMs group there, you can read past discussions about embolizations.