venous malformation of perineal area - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Adults Living with Birthmarks

Reply
 
Thread Tools Display Modes
  #1  
Old 05-17-2006, 01:44 PM
sissy
 
Posts: n/a
Default venous malformation of perineal area

I am a female several years from retirement and have recently been diagnosed with a venous malformation of the perineal area. It has gotten worse. As a young child it was called a birthmark. Most of my adult life it was called varicose veins. I had 2 surgeries as a child, but they did not remove all of the veins. Recently, I had a colonoscopy and it was called a serious hemangioma. After a bunch of doctors visits, I now know it is a venous malformation.
I am searching for another female who has a similar condition in this area of her body and would like to know what, if any, treatment she has had.
Reply With Quote
  #2  
Old 05-18-2006, 12:14 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,729
Default

Hi Sissy,

One thing you might do is to visit:

http://birthmark.org/experts.php

and ask the Venous Malformation expert about different treatment options. His office or staff may be able to put you in touch with other adult women who have a similar condition.

Keep us posted!

Missy
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
possible venous malformation in finger cjsmom AVM Help and Resources 14 05-27-2013 04:56 PM
Venous Malformation support blamb AVM Help and Resources 12 03-24-2013 02:12 AM
Venous Malformation gina0291 AVM Help and Resources 14 09-30-2010 02:52 PM
Lymphatic malformation w/multiple venous anomalies Tamara051275 Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 0 10-02-2008 05:17 PM
Multi-focal Venous Malformation Gayle AVM Help and Resources 9 11-11-2003 04:49 PM