My daughter was also born with extensive PWS on her face, chest, back, legs, arms,buttock and soles of her feet as well. She had an MRI and a MRA done at 1 week of age to rule out internal and she will see a opthamologist every 3 months to check for glaucoma. Her laser treatment starts in Nov as well in Houston at the Texas Children's Hospital. I am grateful that her PWS is pink and lacy in color. The only plan to treat her face, neck and chest. Does anyone else suggest treating the other parts of her body at an early age?