First of all welcome to the group.
I am a 24 year old with facial PWS/SWS.
I completely understand what you are going thru. Living with our condition is not the easiest in the world.
I want you to know that there is light at the end of the tunnel for everybody. Sometimes it just takes time. My life has been like a roller coaseter ride. If you would like to read about me you can visit my website at www.hankspws.com
. I have before and after pictures from laser treatment and plastic surgeries. I have links on my website of other people's personal websites. You can also find some of these same websites on this site as well.
I hope to hear more about you soon.
Good luck with your appointment.