My 4 month old just had first treatment - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 01-16-2007, 04:16 AM
robolynn29 robolynn29 is offline
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Well, my daughter had her second treatment. Erika - I did see you once but didn't have a chance to talk to you. Dr. Metry was ecstatic to see the white spots. This treatment was more extensive covering face, neck, ears, chest, left arm and part of her back. Because she's responding so well, Dr. Metry is going to try lasering the spots on her legs to see what response we get.

The white spots haven't changed colors back to pink or red, but the other places where she has PWS that haven't responded quite as well, continue to change colors from purple when she's really cold, to very light pink.

We will continue treatments until we get the best result possible and then hope that the future holds new treatments to try as she gets older.

I know that many people worry about the general anesthesia, but I feel confident that we are doing the right thing for her.
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  #12  
Old 01-16-2007, 11:08 AM
missy missy is offline
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Yes, so many people worry about the general anesthesia, but I have yet to hear of a problem with it.

Glad to hear the spots are doing well!

Keep us posted, but thanks for the update!

Missy
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  #13  
Old 01-16-2007, 09:40 PM
mikeb23ft
 
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Anesthesia is a great idea for the younguns! I had it when I was first having treatments in the 80s. I was quite young.
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  #14  
Old 01-29-2007, 01:07 AM
Aprilsmom Aprilsmom is offline
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Hi Robin Sorry i didn't see you. My husband had to stay with my other daughters so I was a little nervous doing it alone but we did good. I am glad your daughter is doing and responding well.
They did twice as many "dots" as they had been doing. We are going to see Dr Metry next month to discuss further treament. The area is still red so we can't tell how much lighter the last treatment made it. Before treatment it was very light and Dr Metry told me that she thought this was it that it was probably as light as it was going to get. I still hate that it gets darker with temperature but that will always be. I am also hopeful for what the future holds as far as treatments go.

erika
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  #15  
Old 01-31-2007, 10:22 PM
sdelight1 sdelight1 is offline
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hi al (and erika)l thanks for all your positive responses. sorry i didn't reply but i got a bit over anxious about hospital appointment as to whether they would give my son the full treatment under GA for his birthmark. this is what i was hoping for.

i am feeling really despondent today as we have just returned from the hospital where they told me they would not be doing the full treatment of my son's birthmark as the test patch had not responded adequately enough. they are going to do another test patch to see if it will respond better. they have already done two test patches the stronger one has responded better than the other. i was ever hopeful as the laser dots had responded. they have just made me feel now as if it is up to the gods as whether this next test will go so well. i am so upset and feel quite lonely.

my husband has told me that i am over reacting and he is fed up of me. he is doing tough love trying to make me realise there are worse things that could happen (which there are i know). to top it all off my good friend i s pregnant and has had the spider veins on her nose lasered so she looks good for the photos which has also upset me a great deal and i am not sure why.

not sure what i am looking for here but i was feeling so positive his birthmark has responded and i thought it would be treatable but now i 'm back to square one waiting and waiting

i am sure i will feel better tomorrow but at the moment am feeling like the end of the world (don't get me on to why i can't speak to my parents about this. last time they ignored my tears and talked about dishwasher salts.)

maybe a bit too sorry for myself
SD
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