Would like your suggestions! What to do? How to get rid of it!? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 05-21-2008, 12:35 AM
byebyeh byebyeh is offline
Junior Member
 
Join Date: May 2008
Posts: 4
Cool Would like your suggestions! What to do? How to get rid of it!?

Hi Everyone,

Our baby is 6 weeks old and he seems to have a growing birthmark on the side of his neck. It seems to be a strawberry hematoma. It started off much smaller and seems to have grown pretty good over the last 6 weeks.. We of course are exploring different options to see which might be suited for us. I am attaching a picture for you to view, please advise what you think the best method to proceed would be. Trying to get in with a specialist on these things ASAP. Thanks again!

byebyeh
Attached Images
File Type: jpg 6weeks1.JPG (37.6 KB, 84 views)
File Type: jpg 6weeks2.JPG (34.1 KB, 64 views)
File Type: jpg 6weeks3.JPG (36.3 KB, 64 views)
Reply With Quote
  #2  
Old 05-21-2008, 03:28 AM
mmarrari mmarrari is offline
Junior Member
 
Join Date: Jul 2007
Posts: 20
Default

Hi,
Congratulations on your baby. It is always important to have a specialist evaluate hemangiomas, especially if it is growing fast, to make sure it is not interfering with any function and assess the need for treatment (or lack of). You can email an expert from the "Ask the expert" section on the main page of this site. Dr. Levitin is Dr. Waner's partner in NY. he is very experienced and caring and I am sure he will get back to you soon. You can attach a picture and have him give you his opinion. Good luck! your baby is adorable.
Reply With Quote
  #3  
Old 05-22-2008, 01:52 PM
yoopertroll yoopertroll is offline
Junior Member
 
Join Date: May 2005
Posts: 10
Default

Your first step is getting in with a specialist. There are many all around the United States. Due to the location it may indicate that there are airway hemangiomas as well. He also should be screened for PHACES. You son will probably be started on steroids to control the growth. Your Pediatrician may even be able to start him on the steroids. There are side effects from the steroids but the benefits usually outweigh them. There is medicine to help with the tummy issues some get from being on them. Keeping it small will help it go away faster later.

My daughter is 4 and had a large H that stretched from her rt ear to her chin, neck, lower lip, mouth, tongue, with spots on her lt ear, chest, rt nipple, rt side. She was on the steroids for a year and then we watched and waited for 18 months and then we started laser at age 2-1/2. She has had lip reconstruction surgery done to fix the ulcer scar and remove excess tissue from her lip. To date she has had 7 lasers.

Barb
Attached Images
File Type: jpg Leaving for Milwaukee 5-19-04.JPG (37.6 KB, 45 views)
File Type: jpg Roni.JPG (31.6 KB, 40 views)
Reply With Quote
  #4  
Old 05-23-2008, 12:50 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default

Hello,

Based on the photos, I would conclude that this is a segmental hemangioma (hematoma is pooled blood caused by trauma...not the same thing). My son had a similar h. on his face and I am sorry if i am repeating myself and we have already talked via email. We had a lot of success with our route of treatment, but even h. that look similar may not require or respond to the same tx. I would be happy to share some options with you based on the pictures you shared. Feel free to email me and check out my son's photos on the vb support group on msn under photos albums NIcholas Segmental hemangioma on page 22http://groups.msn.com/vascularbirthmarksupport/general.msnw?action=get_threads
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #5  
Old 05-23-2008, 07:34 PM
byebyeh byebyeh is offline
Junior Member
 
Join Date: May 2008
Posts: 4
Default

Thanks to everyone for their suggestions. We are going to go after this aggressive. Will update everyone with the progress..
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Any suggestions for a concerned mother... Antoniosmom AVM Help and Resources 1 05-29-2009 02:40 AM
Hemangioma Treatment Stats and Suggestions?? Erin Help and Resources for Hemangiomas 1 03-30-2009 08:22 PM
Suggestions on Silicone Sheeting? pschanel Help and Resources for Hemangiomas 1 08-21-2008 10:11 PM