New member-hemangioma or vascular abnormality?
My daughter Nadia is 21 months old. She has three birthmarks.
A strawberry one on her right arm that was visible at birth and is almost gone.
A 'lumpy' strawberry mole behind her ear that has stopped growing at about 1/2 an inch (1 cm).
The third a hemangioma?: At about five weeks we noticed this bruising on her left cheek, which has been diagnosed as a cavernous hemangioma. It has since grown to be about 2 to 2.5 inches big. (The size depends on the day.) It seems to have stopped growing at about 18 months?, but shows no sign of involution yet. It is bluish and veigny. Please see attached photo. Some days the veigns are more visible than others.
I read somewhere that doctors can misdiagnose hemangiomas. That if the bump changes size when blood flows to the brain (crying or being hot), it could mean that it is actually a vascular abnormality. I noticed that Nadia's bump does do that. If she's crying or in the summer some days it would seem bigger than general for no apparent reason.
How would I be able to tell the difference? Can anyone tell from the photos if it is definitely a hemangioma?
I have seen an ear nose and throat specialist at our local kid's hospital twice. Both appointments lasted about five minutes! I have another appointment coming up and want to be better prepared with lots of questions. The 'specialist's' approach has been one of wait and see, or more like just let it do it's own thing. I don't think he is actually a hemangioma specialist...
I also read somewhere that if it starts to grey, this means that it has stopped growing and the involution is about to begin. If it greys fast, that means rapid shrinkage (age 3-5). If it greys slowly, this means it could still be present age 5-10. Does anyone know more about this?
I would appreciate any feedback!
Last edited by Halimom : 11-21-2008 at 03:31 AM.
Reason: forgot to add photos