seeking propranolol info - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 01-19-2009, 02:50 AM
ruthiesmom ruthiesmom is offline
Junior Member
 
Join Date: Jan 2009
Posts: 11
Default seeking propranolol info

My 15 week old daughter has 3 H's - two small ones that aren't of concern and don't appear to be growing and one large one that has grown rapidly since birth. The large one is on her face in between her eyebrows and the swelling now is getting closer to her right eye and blocking her full range of vision. We have seen two specialists here in Atlanta. A pediatric plastic surgeon known for laser surgery who recommends just that and, just recently, a pediatric dermatologist. They both recommend treatment as soon as possible. The derm would like to use propranolol. I have found some good info on propranolol online. I guess my biggest question/concern now is figuring out how to pick a doctor. I see many postings about people seeking out doctors in bigger cities and am not sure if that is something that I should be doing. The plastic surgeon we saw is on the Find a Physician section of this website, but the derm who would like to administer the medication is not. Is that important? Any other helpful info about propranolol would be greatly appreciated - especially first-hand info. It seems that all of the postings I've found online are for infants quite a bit older than mine. I am curious if anyone with an infant closer to my daughter's age has tried it.

Thanks in advance,
CC (Ruthie's mom)
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
successful propranolol treatment! ruthiesmom Help and Resources for Hemangiomas 15 12-18-2013 01:23 PM
I love Propranolol jrains1234 Help and Resources for Hemangiomas 3 01-28-2010 12:50 AM
How to consider treatment options ttn Help and Resources for Hemangiomas 3 05-02-2009 02:50 AM
Our propranolol success SCollins5501 Help and Resources for Hemangiomas 3 02-27-2009 05:39 PM
Starting propranolol tomorrow! mamatomaysie Help and Resources for Hemangiomas 6 02-25-2009 11:35 PM