FED UP!!! Discouraged and depressed!!! - Vascular Birthmarks Foundation Forum
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Old 02-02-2009, 02:23 AM
Cuety83 Cuety83 is offline
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Join Date: Jan 2008
Location: Rhode Island
Posts: 11
Default FED UP!!! Discouraged and depressed!!!

Before you read this, you might want to read "fairly new hi guys" that was posted a while ago by me Cuety83. Hi, im Stefi. I have Capillary vascular Malformation of my entire right leg. Last february 2008, I had my entire right greater saphenous vein removed because it was not working and causing me pain. Well a few days after, i developed phlebitis on my inner right thigh the size of a football, the pain was so bad, I just wanted to die, went to the hospital twice for it and they said there was nothing they could do, i would have to wait for it to go away on its own. Well three months later it did, but it left a little soft lump, through the months that lump got bigger and bigger and then it branched out all over the inner side of my leg from my grion to my ankle. The pain is umbearable most days, sometimes at work, I just start to cry, but I know I got to keep working. The pain is a burning sensation and then a throbbing aching feeling. I have tried stocking, motrin and I practically stalked my vascular doctor to do something. So I have had A MRA done and all this time I thought, it will be okay, something will be done, I will be normal again. I would rather take the pain before the surgery than the pain that I have now. For some reason, the pain makes me tired a lot of times. I am miserable, not my active self anymore, the though of doing normal things scares me because Im afraid i'll be in pain and start limping. So
I went to the doctors for the results and he said THERES NOTHING THAT ANYONE CAN DO!!!!!!! do you think he made a mistake with the first surgery? I have cried and cried, There is no way I want to live the rest of my life with this much pain, I just passed my test to get into a nursing program in my area, im not going to be able to do it if I can't stand the pain from working. I'm almost ready to quit my job because of this, not only that IM SO SCARED because as the months are going by the pain is getting WORSE!!!! The doctor said that all these veins that are bulging out and causing all this pain are veins that are working for my circulatory system in my leg, my leg made these veins to pump the blood. if he takes them out, my leg will blow up. He's sending me to interventional medicine for a second opinion, but he said that he will say there's NOTHING HE CAN DO EITHER!! I don't know what to do, I am so discouraged, If I can't stand this pain, I can't live the rest of my life normal. When I was young, I used to wish I didn't have this because of cosmetic problems, but now, I don't even care, I just want the pain to go away. I want to try getting a referral to the vascular center in Boston if I can, see if they can do something. I don't know if my regular doctor will give it to me, she's kind of strict. What do I do?????? If he really made a mistake, is there anything I can do about it?? This all started after the Surgical procedure that he did.....
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