14 months old..Still waiting it out (H on Forehead) - Vascular Birthmarks Foundation Forum
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  #1  
Old 01-27-2009, 03:26 AM
MOLLIE MOLLIE is offline
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Default 14 months old..Still waiting it out (H on Forehead)

Hey all. I just wanted to update and say hello to everyone. Just wanted to share pics of my little angel. She is 14 months old now and her H has gone down a lot and the color has gone from bright firey red to light pink. The doc says that he wants to see her in a year. He still thinks that she will have to have some kind of removal or some type of plastic surgery. I am attaching 3 images. The first is a black and white of her when she was 4 months old. The next 2 are recent pics. You can see in the side view she is crying which makes her H bigger. I hope this helps you new parents out that are waiting it out. It gets easier and there will come a day that you don't even think about it. My prayers go out to you. Blessings to you and your little ones.
~Mollie~
Attached Images
File Type: jpg lindie4months.jpg (73.3 KB, 125 views)
File Type: jpg lindiefrontweb.jpg (54.9 KB, 118 views)
File Type: jpg lindie sideweb.jpg (37.1 KB, 117 views)
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  #2  
Old 01-27-2009, 11:19 AM
missy missy is offline
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Thank you for taking the time to post those. It will indeed help other parents who opt to wait and see.

She sure is beautiful. You're a lucky mom!!

Missy
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  #3  
Old 01-27-2009, 11:44 AM
MOLLIE MOLLIE is offline
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Thanks Missy. She is such a joy. I just remember how scarey it was and all the emotions that went along with it. She was actually scheduled for removal at 4 1/2 months but after a lot of prayers and sleepless nights we decided to wait. Her H grew at a rapid rate from 3 months to 5 months. Hindsight we are so glad we waited because her outcome now will be much better as far as scarring goes. It is such a hard decision and my heart goes out to all who are in that stage. This site was such a life line to me and I thank everyone who helped me along the way.
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Old 01-27-2009, 05:37 PM
gamom gamom is offline
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She is beautiful! When did her hemangioma begin to shrink and change? My 7 month old's hemangioma continues to grow, even after 3 laser surgeries. It is nice to see pictures and know that there is a chance it will begin so go away. Thank you for sharing!
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  #5  
Old 01-27-2009, 05:50 PM
MOLLIE MOLLIE is offline
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It has been slow. Her H was flat and light pink at birth and 1/3 of it's size. It grew very rapidly from about 6 weeks old to about 5 months. It seemed to stay the same from about 5 months to about 10 months (very very deep deep red and very raised). Just in the last 2 to four months have we seen more of a rapid involution.
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  #6  
Old 01-27-2009, 09:34 PM
nickbar nickbar is offline
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ADORABLE! (even the cranky face)!
Thank you for sharing your story, it really is helpful to have all the options on the table....including "waiting".
Corinne
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  #7  
Old 01-28-2009, 12:07 AM
mommabear mommabear is offline
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Thanks for sharing those photos. She is beautiful. My daughter just saw a dermatologist today for a very similar one on her forehead. She suggested we trial Aldara (imiquimod).
Anyone have any experience with it?
Thx.
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  #8  
Old 01-30-2009, 01:07 PM
Tessamarie Tessamarie is offline
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Hi, your daughter is gorgeous! We were initially told with our daughter to wait it out but then the doc said we should try Temovate. We just started (our daughter is 8 months old with a very similar hemangioma as your daugher's one, also on the forehead). Has anyone tried this cream? Is it safe?
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  #9  
Old 01-31-2009, 03:28 PM
MOLLIE MOLLIE is offline
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I have not tried any of the creams. Is her H still growing?
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  #10  
Old 03-12-2009, 08:25 PM
Tessamarie Tessamarie is offline
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Yes, her H is still growing. It is getting bigger almost daily (or at least it seems that way to me!). I am going to take her back to her family doc and see if we can get a referral...maybe I should wait it out but it is starting to push down on her eye a bit and I am concerned.
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