Woo-hoo!!! I received some opinions about Dr. Blei from different people. Some were bad, some were good. I will give you mine now, after the 3 visits we've had with her.
First visit was initial consultation, and I opened this topic right after we had seen Dr. Blei. She told us we'd be starting oral steroids within a month. She also scheduled a visit with ped. ophtalmologist for us (she called their office herself, while we were in her office). She was able to put us in ASAP for the next morning. She also called our pediatrician to discuss Alex's conditon with him.
Second visit was next week, and we've had a slight problem the morning of the visit. Alex knocked off the scabs off the ulceration, and I covered the wound (which was not bleeding then) so it didn't get infected. When we got to Dr. Blei's office and they started removing the dressing the hemangioma started bleeding profusely, because the dressing I put on stuck to her skin
. Dr. Blei was quick to use the surgical foam to stop the bleeding, she also put us in the hospital overnight for monitoring. At first I didn't understand why, now I just realised it - Dr. B mentioned that she only saw such bleeding with 2 other patients throughout her career. She came to visit us in the hospital the next morning. The day she put us in the hospital she also started Alex on Orapred (prednisolone), she started the steroid early because of the size of the ulcer and also because of the bleeding.
Our third visit was this week (that's the third week in a row we saw her). The night before the visit we had another incident - Alex knocked surgifoam off the H and gave me a scare. I called Dr. Blei's office at 10 PM, the Dr. on duty was paged, and I received a call back within 5 minutes. After I explained the situation she called Dr. Blei to consult and called me back. I was very comforted by the response time, and that Dr. Blei said she'd see us first thing in the AM if we wanted to, even though our appointment was not until 1:30 PM. When we came in she slightly increased the dose of steroids (from 3ml to 3.3), checked Alex out and answered all our questions. She said she spoke with our pharmacist, called ophtalmologist's office and put us in on the same day we have a next appointment with her.
Well, all in all - I feel that Alex is being treated great (not just medically), our insurance covers the treatment and the visits, and we never waited for more than 30 mins to see Dr. Blei. Contrary to many people's opinions (even those who highly recommended her) we found Dr. Blei to be friendly with us, but in a very professional way. She also gave us a phone # for another patient of hers who had a very similar H, and her parents were willing to talk to us.
Alex's H is improving, the puffiness is going down already, and she's been on orapred for a little over a week! We will eventually need surgery, but not until later. I took some fresh pics of little A and will post them on our fotki.com album shortly.
once again, thanks to everyone who replied to me!!!!
Anna (Alex's mom)