What are the signs of involution? - Vascular Birthmarks Foundation Forum
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  #1  
Old 04-10-2009, 04:55 PM
Tessamarie Tessamarie is offline
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Default What are the signs of involution?

For those of you who have "waited it out" or for those of you who have sought treatment, what were the first signs that your child's H was in the involution phase? Does the temperature change on it and it is cool to the touch? Change color? Feel softer to the touch? We are still "waiting it out" until our upcoming specialist appointment and we'd be thrilled if we saw any signs of it going through this phase. We're just not sure what to even look for. Thanks!
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  #2  
Old 04-10-2009, 08:08 PM
nickbar nickbar is offline
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The red will start to dull in color from the bright "angry" red as it's worst... and you may start to see gray spots appear. Typically h. start to involute from the center outward. The h. is typically warm/hot to the touch and as involution takes place the temp. does seem to drop as there is less blood supply. The area can feel softer on compound h/deep lesions.

Good luck and the best way to see change is to take photos weekly.

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Old 04-10-2009, 09:19 PM
Tessamarie Tessamarie is offline
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Thanks Corinne! We have been trying to document it all with photos...it is definitely a good way to see the changes over time. I noticed just in the past two days that some of the swelling had gone down and it was softer to the touch (and cooler) but I am not sure if that is just me being hopeful. I will try and take more pictures and compare them to previous ones.
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Old 04-10-2009, 09:30 PM
jgoodman0814 jgoodman0814 is offline
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i know with our daughters h, as she was on steroids and less blood was being pumped through it, it "greyed" quite a bit. you could even see the individual veins at times. it was much "squishier" to the touch and could tell a difference in temp too. hers was so large that it even started to droop or sag. we tried weaning her off the steroids and it became "angry red" again and filled back up with blood. firm to the touch and warmer. keep in mind too that just as the h gets larger at a rapid pace can cause ulcerations, so can involuting at a rapid pace. any time the h shrinks or enlarges the skin can ulcer so keep an eye our for the "scabby" dark spots that form ulcerations. good luck! our daughters site is below with her story and photos.
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Old 04-11-2009, 03:12 PM
Tessamarie Tessamarie is offline
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Hey Jessica, I didn't think of that- the rapid growth or the rapid involution could cause ulcerations. Thanks, that is something that I am going to look out for too. Your daughter's photos are amazing...the result is fantastic.
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  #6  
Old 04-19-2009, 10:04 PM
Tessamarie Tessamarie is offline
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I have noticed just the past week again some more changes...Her H seems a bit squishier for sure plus it seems spotted (if that makes sense)...as if there were white spots on it and the color is a bit deeper and less bright red. Does that sound like involution still? I am posting another pic to see everyone thinks (sorry if it is a bit blurry but I think it is the only one that you can sort of see a change in color in the center of it??) Maybe I am seeing things though.
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Old 04-20-2009, 12:43 AM
Tessamarie Tessamarie is offline
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Here again is the picture from almost a month ago (I think) just for some comparison with the picture I posted today. I think in this one it looks a much brighter red and I don't see the same whitening in the middle. But, again, maybe I am just being hopeful?
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  #8  
Old 04-21-2009, 07:09 AM
andrewedwardjudd andrewedwardjudd is offline
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Default Our Daughters is in a similar position

Our 8 week daughters H is on the front of her forhead on the opposite side of her face. We are just assuming it will fade away..........eventually. But from what i have learnt so far it is still expected to be in a development phase for maybe another year or more.

Since it developed the full colour it has grown maybe 1-2mm in 10 days.
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File Type: jpg 20090321reduced pixels.JPG (50.2 KB, 45 views)
File Type: jpg 20090318 reduced pixels.JPG (19.4 KB, 41 views)

Last edited by andrewedwardjudd : 04-21-2009 at 10:00 PM. Reason: 1. extra pictures 2. DOB was 20090218
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Old 04-29-2009, 05:35 PM
ShayInNC ShayInNC is offline
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Has anyone noticed that as it involutes, it seems to get divots, or "seeds" looking spots, like a real strawberry has? My son's is developing more of these "seedy" spots, and I wonder if that is key to involution?
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Old 04-29-2009, 05:41 PM
Tessamarie Tessamarie is offline
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Hmmm..I was wondering the same thing as you are. My daughter's does seem to be developing more seedy spots..almost white in color in the middle of her H...I wonder if it is involution???
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