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Old 05-18-2009, 08:17 PM
sommer1978 sommer1978 is offline
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Question Given no pain med after ulcerated hemangioma

My son was born with a large hemangioma on his right arm. It started to ulcerate so we set up a laser treatment in Little Rock and it was preformed two weeks ago. Due to the ulceration, and because he was a preemie, they kept him in the hospital for one night. The nurse told us because of the ulceration they would have to scrape the top off and they would be giving him pain medication, a very small amount of morphine. After the procedure was done he was a little dazed and the nurse never mentioned anything about giving him anything for pain. So, I just thought he received some but when we got back to his room my son started to scream out of control and learned they didn't give him anything. I asked if they could give him some pain medication, they said yes we can give him some Tylenol. I thought okay we will try that but when it didn't work the nurses asked if I wanted to give him something stronger. I said yes because I could tell he was in so much pain. They called the doctor to see if they could give him something and he said no, he is not in pain he does not need anything other than Tylenol all it feel like is a sunburn. Okay, I know my son and I know his pain cry. Not only that but how the hell do they know what it feels like? Come to find out with an ulceration it feels like a third degree burn. The nurses were even irritated that the doctor just passed us off. One of the nurses came in and said this is crazy, I will keep paging this doctor until he gives him something. Finally 15 hours after his surgery, and 15 hours of screaming the doctor gave him some codeine, which he immediately stopped crying. I just wanted to know if anyone else knows about the pain these procedures cause and what pain medication was given in your situation. My son has to have these treatments every 5 weeks, and I am not going to let him scream in pain.
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Old 05-18-2009, 09:01 PM
nickbar nickbar is offline
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Laser treatment on a vascular lesion is like a sunburn (we usedTylenol for 24 hours post laser)....but ulcerated lesions are extremely painful... the doctor should have been much more sensitive to this. Did they give you any advice on using ointments to protect the area?

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Old 05-19-2009, 03:35 AM
sommer1978 sommer1978 is offline
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Quote:
Originally Posted by nickbar View Post
Laser treatment on a vascular lesion is like a sunburn (we usedTylenol for 24 hours post laser)....but ulcerated lesions are extremely painful... the doctor should have been much more sensitive to this. Did they give you any advice on using ointments to protect the area?

Corinne
Yes they did but when when it's applied it won't heal or scab over. Last week we were following the Dr. directions and it ruptured because of the cream. I don't know what to do we have been though so much and when I call the doctor they don't really sound concerned.
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Old 05-19-2009, 12:49 PM
jgoodman0814 jgoodman0814 is offline
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he should have been givin some kind of pain meds after a treatment like that. when my daughter had a small laser treatment done they did give her tylenol but hers was the size of a nickel. listen, you are one of the very few people i have seen post on here whose child had an h on the arm. would you care to contact me? my daughters h was on her right arm and a rather large one. i would love to just exchange info with you and maybe even help you out. jgoodman0814@yahoo.com or just visit my daughters site below and my email is there too. hope to talk to you soon.
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Old 05-25-2009, 01:58 AM
CarrieChris CarrieChris is offline
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We had a similar situation. Bella had her first PDL done at Beth Israel and they only gave her tylenol. I asked for something more and the nurse made me feel like a complete jerk. She didn't have an IV so they would have had to give her an injection. I said "GIVE IT" and she said you want me me to poke this baby? She argued with me and finally I said just give me the discharge papers. I took her out of there with her screaming like mad and then gave her the codeine that we had for her ulceration once I got to our car. RIDICULOUS! I left there in tears. It was a horrible experience.

The next PDL was done at Roosevelt. She screamed like crazy after that one too. The difference was that Dr. Waner came in and said "this child is in pain. Give her some morphine." They did and she was so much better. He then came back and checked on her a while later and she was doing great.

One thing to mention though is general anesthesia also makes my daughter extremely irritable. I think it was a combo of pain from a huge ulceration, PDL, and anesthesia. Either way, the morpine helped.

Carrie
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Old 05-25-2009, 02:03 AM
CarrieChris CarrieChris is offline
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Default scabbing over

Just to note, I don't believe that the goal is for the area to scab over. Most ulcerations heal better when they are kept moist so it provides the wound bed an optimal environment for new cell growth.

Carrie
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Old 05-25-2009, 02:05 AM
CarrieChris CarrieChris is offline
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Email Dr. Serena on the ask the expert section. He's a wound care specialist. He can possibly give some recommendations that your doctor could try.
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Old 05-26-2009, 02:39 AM
dnwiley dnwiley is offline
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My daughter has not received any treatments for her H, so I'm sorry I don't have any particular advice to offer. I just wanted to encourage you to continue trusting your instincts about your child's pain and demand proper pain relief. I just read an article in a parenting magazine about the widely differing views doctors take on infants' pain experiences. The gist of it was that some doctors/medical staff believe that infants feel pain to a lesser degree than adults do or that their pain is less significant because they won't remember it (incredible, I know!). It urged parents to not assume that infants are getting a certain level of pain relief. To instead be very aware of changes in your child that signify pain, continue to communicate that to doctors, and advocate for proper pain relief. You're absolutely doing the right thing.
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