PWS folks - cold all the time?? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 11-03-2009, 05:05 PM
RowdyBliss RowdyBliss is offline
Junior Member
 
Join Date: Jun 2009
Location: Delaware
Posts: 29
Default PWS folks - cold all the time??

Hi folks!

I'm going to my primary doc soon to start figuring out treatment, etc. for my PWS - and to see if there are any more serious underlying issues (like KTS). I want to be as thorough as possible with my medical history with my primary doctor, as my former primary has just been thrown into jail for fraud and my medical records are floating around in the ether somewhere. I'm sure I'll be able to track them down, but it could take weeks, maybe months, and my appointment is on 11/19.

One of the things that I've always been curious about is that I am ALWAYS cold! Like, always. Even as I type this, I am sitting in my cubicle and the thermometer that I keep here says it's roughly 70 degrees - and I am bundled up with my wool coat and scarf. If I could wear gloves, I totally would (seriously considering fingerless gloves). No, I'm not getting sick; this is normal for me. Even the tip of my nose is cold. Sometimes, my feet get so cold that they hurt - and my PWS turns a scary dark blue, especially where it covers my toes.

Someone once told me that I probably have Reynaud's syndrome - which is a condition associated with vascular issues - but I don't have a diagnosis... yet.

Do any of you PWSers get cold all the time, or am I a rare lucky one? Just curious more than anything, I guess, and wondering if it's even worth mentioning to my doctor.
__________________
*~*~*~*~*
With all thy getting, get knowledge.

Come visit my blog:
http://shakingthetree.tumblr.com
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump