PWS on back and leg-infant - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 01-20-2010, 05:38 PM
samsherman samsherman is offline
Junior Member
 
Join Date: Jan 2010
Posts: 8
Default PWS on back and leg-infant

Hello,
Our almost 10 month old daughter has a PWS on her lower back and leg and I would really like to connect with others who may be in the same position. She has seen an orthopedist and had an ultra-sound which showed what they expected, a cppillary malformation. She will be having an MRI in the upcoming months and we will be seeing a vascular specialty clinic. We are now concerned that this may develop into KTS, something we know may not be evident until she is a bit older. Any feedback on what we might expect and how others have managed would be greatly appreciated!
Thank you!
Samantha
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump