First appointment with Vascular Anomalies Clinic - Vascular Birthmarks Foundation Forum
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Old 03-15-2010, 10:42 PM
sens71010 sens71010 is offline
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Join Date: Feb 2010
Posts: 6
Default First appointment with Vascular Anomalies Clinic

I have my first appointment with the Vascular Anomalies Clinic at University Hospital in Cleveland, Ohio on Wednesday. I'm trying to think of what to say or ask but I just don't know. After 24 years it's like "what's the point?"

Oh, wait, I know what the point is. I had the worst month of my life in February while on YAZ birth control. I don't want to have to worry about things like that anymore!!!!!!!!!!!

What if they say it's too complex to do anything about? I'm not expecting miracles, honestly. But I do hope that I can get rid of some color (it's purple!) and bulbousness (it's not a word but it describes my malformation perfectly). I want it to not affect my salivary gland anymore either! It can be so painful! It is naturally swollen, all the time. After weeks of waking up with drastic swelling, I think my neck skin may have stretched out a little (on the other hand I could just be scarred from the experience and imagining things...)

Oh yeah, I have a venous malformation that encompasses my tongue, underneath my tongue, and top left side of my throat. I can talk and eat normally...until I have a complication and then my life can be quite horrible. I'm a teacher so waking up not being able to talk doesn't quite work.

Anybody have suggestions on questions to ask to help me learn more about my condition or about possible treatments?
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