Help with paying for laser treatments

[Nenna]

Hi all! My 9 month old daughter, Lilah, has a PWS on her cheek and neck and has been recieving laser treatments. Thank goodness we have insurance, but we are still left with hundreds of dollars in bills. We are living on a single income, so coming up with the money is getting to be hard. Does anyone know of an organization(s) that might help us out? Or even some creative fund raising or support? Thanks so much.

Jen

[missy]

I don't really have much advice on this, but I wanted to say hi and welcome.

Perhaps you could talk to our insurance expert

http://birthmark.org/experts.php

and maybe she could help you go through and find if there is more insurance could contribute. I remember once, years ago, there was a case where the procedure was coded wrong and the result was that the co-payment was lowered.

Other parents might have more useful advice.

Missy

[Nenna]

Thanks so much. Will definatly look into it.

[nickbar]

I just got an email update from a mom that is doing fundraising to pay the hospital portion of the bills and she might be willing to share her fundraising experiences with you. If you'd like to talk with her, email me and I will forward your email to her. Her son has a large facial hemangioma.