we saw dr. berk today at st. louis children's hospital. he diagnosed livy as having segmental hemangiomas on the left side of her head and under her chin. she also has them forming on her bottom lip. he mentioned the possibility of airway involvement, as well as restricted blood vessels to the brain. we did an ekg today and if it reads ok, she will start propranolol on monday. he gave us topical propranolol to use over the weekend. we are holding off on the MRI until 6 months, as she is only 4 weeks old. i have read a little about possible airway involvement, but i am concerned about the restricted blood vessels and haven't found much information on them. does anyone know anything about this? also, how many of you started the propranolol at home rather than the hospital? he said it is not their practice to admit them to the hospital to start treatment. just curious if others have done it this way?
~Momma to Logan, 3 and Livy, 1~