propranolol- how long for its full effect to be achieved? - Vascular Birthmarks Foundation Forum
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  #1  
Old 05-31-2010, 10:32 PM
mperron mperron is offline
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Default propranolol- how long for its full effect to be achieved?

How long does it take to see the full or complete effect of propranolol? My son has been taking the drug now for 3months, will we continue to see improvement?
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Old 06-01-2010, 02:58 PM
jkmorgan333 jkmorgan333 is offline
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My daughter just started on it last week so I'm relatively new to this, but my understanding is that it is different with each child. Our dermatologist told us she would be on it for 3-6 months, but I've read of other kids being on it for longer. I think your doctor may be able to give you a more specific answer to your child. Others on this board with more experience may know more about the specifics.
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Old 07-02-2010, 03:58 PM
beef5stew beef5stew is offline
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My daughter started it in January for a 4cm H on her neck. She's turning One this month and we just got back from her specialist at John's Hopkins.

He's suggesting we stay the course until September and re-evaluate at that point. I noticed a color change and flattening right away, but not a significant amount of change since then.

TJ
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Old 07-05-2010, 02:47 PM
momof3inpa2009 momof3inpa2009 is offline
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We noticed a difference right away -it was a slight difference but we did notice a difference (mostly in color) but then there didn't seem to be much of a change at all as about a month or two went by and then suddenly we saw a difference. It was almost like how my daughter's hemangioma grew. Hers started out very small and stayed small for awhile and then BAM it hit a growth spurt and grew quite large. Well it seemed that is what happened with the propanolol too. She was supposed to start being weaned off at around 9 months but we tried it and her H got larger so she is now 10 months and will be 1 at the end of August. She will continue taking the propanolol thru her first birthday and in Sept. her dermatologist wants to really try to start weaning again. Good luck! Oh and as TJ stated we also noticed a color change and a "flattening" effect right away.
__________________
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. At this point we have surgery scheduled for April
http://lexihemangiomapropanolol.blog...roduction.html
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Old 07-05-2010, 06:39 PM
sonoma sonoma is offline
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Hi -- I do not have experience yet with propranolol but we are beginning treatment on Wednesday. My daughter has a deep hemangioma on her cheek. I am trying to set my expectations as to what to expect visually and how fast to expect resuts also taking into consideration that all cases will be different. Does the improvement appear to be gradual in your case? Or is there a noticeable difference after the first couple of weeks and then a slow shrinking phase? Or does the propranolol primarily limit the growth but not shrink it entirely or at all? I would love some insight.

Thanks,
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Old 07-07-2010, 02:00 AM
mperron mperron is offline
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I saw quick results (48hours) with my son's deep h on the side of his nose. The first few weeks we saw vast improvement. He's been on the drug for 4 months now, and his doctor said we've probably seen the full effect of the drug. It looks great! I would say after 2 months of being on the drug, the improvements we saw were more gradual. The size of the hemangioma went down rapidly as did the red colour. It was the bluish color that took longer to improve. My son h is barely visible. It's not entirely shrunk but greatly decreased in size. Don't hesitate to ask any questions.
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