Paying for Laser Treatment for PWS - Vascular Birthmarks Foundation Forum
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  #1  
Old 06-04-2010, 09:29 PM
woneal woneal is offline
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Angry Paying for Laser Treatment for PWS

This is my 1st post on this site..I have looked and read a lot on here! My son Michael is a twin and is 3yrs old w/a PWS on his rt cheek, ear, neck, and extends into his hair line... When he was born we were told to wait a yr. to see if it faded, it did not. So we went to see a dermatologist in Nashville, TN. We set up a laser treatment but was denied by the ins comp, we had sent in an appeal & was denied..they said that the PWS is not affecting his health at this moment so it is not medically necessary to treat it at this time. But they said i could appeal it again...but I am not sure that they will ever change their mind. I didn't know if there were any organizations that helped with financial costs of these laser treatments or helped families fight ins companies. It makes no sense to me that some ins comp will cover it & others won't...it is just so frustrating!!Any advice is welcome!
Thanks!
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  #2  
Old 06-05-2010, 01:27 AM
missy missy is offline
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Hi and welcome!

Go ask our insurance expert, Basia. http://birthmark.org/experts.php

She will help you all she can!! If you tell who your insurance co is, other parents here might have dealt successfully with them

Missy
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Old 06-05-2010, 02:58 AM
woneal woneal is offline
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Missy,
I have been in contact w/her already..she helped me prepare for the first appeal..She had LOTS of great info to put into the letter...I had e-mailed her a month or so ago and she said she would get back w/me...haven't heard back from her..
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Old 06-05-2010, 02:46 PM
missy missy is offline
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I'll see if I can track her down!

Thanks,

Missy
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  #5  
Old 07-03-2010, 09:50 AM
gdykes gdykes is offline
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My response here regarding insurance payment for PWS might not be relevant today. However, I had the PWS on my son's left temple very successfully lasered when he was 6 months old in 1991. Procedure was in Louisville, KY. I was fortunate to have employer group medical insurance with Blue Cross Blue Shield of Alabama. The entire procedure, several treatments, were completely covered and I made the standard 20% copayments. Whether insurance covers it or not might depend upon how the claim is presented by the doctor. I'm not an insurance expert, however. And it was 19 years ago. Hopefully VBF can help you with this.
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  #6  
Old 07-10-2010, 12:56 AM
kaykay kaykay is offline
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insurance not covering these things pisses me off. my heart really goes out to the parents
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