Update - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > CMTC

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-01-2010, 08:45 PM
abatie abatie is offline
Senior Member
Join Date: Oct 2009
Posts: 235
Default Update

Becca just returned from her lasted doctor visits and for the most part the news was very good. Her dermatologist that diagnosed CMTC was so impressed with how well she was doing that she dismissed her from care (unless she would have further complications). She felt that the danger of complications like ulceration was much lower now that she had made it through the first year without any ulcerations.

The cardiologist was also extremely impressed with her. She had no enlargement of the heart or lungs and so she does not need to see him again for a year. This was a relief because we were worried that she would need surgery soon.

The final problem that wasn't so good was her hearing. She still did not have good hearing results and needs to go back and have a brain-stem response test. This will look at how her ear and brain "communicate" with each other to try to figure out where the problem is. Hopefully this test will give the needed answers. They recommended going ahead with the tubes in a week but they didn't feel it would solve the problem.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump