Hemangioma over anterior fontanelle - Vascular Birthmarks Foundation Forum
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  #1  
Old 09-09-2010, 05:22 PM
cinbja cinbja is offline
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Default Hemangioma over anterior fontanelle

My six month old daughter has a H over her anterior fontanelle. It appeared around one month of age and has grown since then. Her pediatrician has referred us to a pediatric neurosurgeon since the H is partly over the fontanelle. Can anyone tell me what to expect at this visit? What would the concern be over the fontanelle? Thank you!
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Old 09-09-2010, 11:52 PM
missy missy is offline
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I have no answers for you on that, just wanted to say hi and welcome.

When is your meeting with the neurosurgeon?

Missy
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Old 09-10-2010, 03:50 PM
nickbar nickbar is offline
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Be prepared with questions to ask. Sometimes not even knowing what to ask is the problem, or when you get to the appt. you forget what to ask, or don't have time. I would recommend having the questions you want answered written down.

I have a long list of q's if you want to email me I can attach. Here is a quick list

What imaging will be done to determine the extent?
What should we expect for growth/involution?
What symptoms/issues should I be watching for?
What options do we have for treatment (all options...even if they are not something you or the doctor feel comfortable with... just know what is out there).

C
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Old 09-11-2010, 02:13 AM
KatieG KatieG is offline
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My daughters was just in front of her soft spot and she just had it removed yesterday. Her Dr. was not concerned at all by the location of it. Please let me know if I can answer any questions for you. (Oh and my daughter is 4m old)
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Old 09-11-2010, 03:45 PM
smurph smurph is offline
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I'm no expert on this at all, but maybe they have a team of doctors like they do in Boston, like a vascular anomaly team, so the neurosurgeon can consult with a vascular birthmark specialist??? Just a thought. Maybe you could ask about that.

Shannon
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Old 09-11-2010, 07:11 PM
cinbja cinbja is offline
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Katie, how did they remove it on your 4m old? I'm afraid of her feeling the pain in some way. I would love to have a list of questions to ask as this is all new to me and I'm only beginning to research. Thank you everyone!!
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Old 09-11-2010, 11:43 PM
KatieG KatieG is offline
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Quote:
Originally Posted by cinbja View Post
Katie, how did they remove it on your 4m old? I'm afraid of her feeling the pain in some way. I would love to have a list of questions to ask as this is all new to me and I'm only beginning to research. Thank you everyone!!
It was surgically excised. He opened the skin and took it out, then stitched her back up. She just had it done on wed. I honestly think its been harder on me than her. Once she got out of the anesthesia sleepiness/crankiness she was totally normal by that afternoon! Did you see my surgery befores and afters I posted today?

Feel free to email me! Katiegalvin02@yahoo.com
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